Thursday, March 27, 2008

do drugs, i'd rather stick anchovies in my ears!

it's been a long week here in central pennsylvania. dad's enzyme levels have been high and the doctors had been content to just watch them and see what was going on. even though they didn't actually know what was going on. last week they put dad on steriods for the week and then monday morning they decided he needed to go to danville to get a liver biopsy. so monday afternoon he went and checked into the hospital. they told us he would come home tuesday, tuesday they did the biopsy and the results weren't going to come back in time so they said he would come home wednesday, wednesday they decided that he needed to go back on the interferon (i'll explain in a minute) and that they needed to have him under observation so he would come home thursday, today is thursday. mom and dad's friend was almost to the hospital to get him (because they told him he was getting discharged) when the doc's changed their mind and said he had to stay. so he's still there. and one doc says he'll be free to go tomorrow, another says saturday. AWESOME. i am a mess. i hate this so much. it's just like what happened in november. he went for some blood work and didn't come home until 2 months later. after 2 transplants and almost dying a few times. i know that this time is going to be different. but it sucks. and the drugs he's back on are the ones he was on years ago that didn't work and made him sick. their side effects are "flu like symptoms" so he's achy, tired, feverish, nauseated, and overall just has a shitty quality of life. the side effects are only supposed to last a few days after the treatment, but the last time he was taking the drugs weekly. so for half of every week he had the flu. for an entire year. i can't even begin to describe how hard this is. the new liver was supposed to make life better. and now he's just getting well, all healed up and ready to go do stuff, and he's going back on drugs that will give him flu like symptoms for half of his life. and for how long? they didn't do a damn bit of good last time. he was on them for a year, they took him off and 5 years later he has liver cancer and you know the rest of that story. i'm just frustrated and angry and scared and i need a break. i've been saying i need a break almost every week in therapy. and i just haven't gotten one. sigh.

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